Many of us may know people with rare disorders or diseases but not many of us know that a rare disease act is being pushed through congress right now. That's right, a rare disease act was filed by Senator Edgargo J. Angara last February 23, 2009. Although it was back in 2009, the legislative status of the act is still pending in the committee.The Philippine Society for Orphan Disorders, Inc. (PSOD), a non-profit organization, founded by chairman Dra. Carmencita Padilla, Geneticist, and it's president Mrs. Cynthia Magdaraog, a mother of a child with Pompe disease. PSOD has vision of "Our vision is to be the CENTRAL NETWORK for the advocacy and effective coordination of all viable efforts to sustain a better quality of life for the individuals with orphan or rare disorders in the Philippines" and a missoion to "Our mission is to uphold the primary concerns and welfare of individuals with rare disorders by". Before PSOD was founded, in the past fifteen years medical professionals from the University of the Philippines, National Institutes of Health, and Institute of Human Genetics have been continuously attending to the needs of these orphans.
